Genomics and Society

Integrating deeper knowledge on the ethical, legal, social, educational and policy implications of genomics will benefit its translation into the clinical setting and across society. By investigating these dimensions of genomics translation, the interdisciplinary project team will develop robust methodological tools, recommendations and educational strategies for informed decision-making. Research led by Prof John Devereux will develop a framework informed by analysis of case studies across four key areas of activity: biobanking; predictive/pre- symptomatic testing; therapeutics; and gene-editing and therapy. The framework will provide an ethics-informed evidence-base for applying genomics to clinical practice and provide practical strategies to inform Australia’s health system planners and policy makers.